Living with DIPG- Radiant After Radiation

It's finally cooling off here in Texas so we are able to enjoy our backyard again.  Ava has always loved chalk and she got a huge laugh out of this chalk that looks like dessert.  It was so nice to see her outside playing! 

Overall she is doing great.  She is trying to walk and can crawl again.  We are planning a mini trip to an indoor waterpark next month.  That was one place she wanted to go all summer but we weren't able to take her for various reasons.  I know we will all enjoy a weekend of playing and splashing!  

She finished her 10 days of radiation last week and one cycle of  temodar.  She handled it very well so we will discuss her starting another chemo cycle with her doctor.  We will probably get a MRI in October to check the status of the tumors.  Prayers that they shrink so she can move more freely!  

I know I've said this before but we couldn't get through this without your help so I just wanted to thank you all for following us during this journey.  It's not a path we would have picked but it makes it just a little bit easier knowing you are there for us.  Thank you. 

   *If you want blog updates delivered to your inbox, be sure to sign up at the bottom of the blog under "follow by email" or "like" Ava's facebook page.*



3 Responses to “Living with DIPG- Radiant After Radiation”
  1. Brittany Algorri says:

    The indoor waterpark will be so fun!!

  2. Emily says:

    Thank you for continuing to share your journey with us Cynthia. It is an honor to walk beside you in this teeny tiny way. Prayers continue from AZ

  3. Aunt Bean says:

    Looking good Ava.. Keep up with the Chalk art... Sometimes that Chalk looks good enough to eat..
    Love you More

    Aunt Bean

Leave A Comment

Powered by Blogger.