Living with DIPG- Giggles, Glitter and Gold!

Ava got to be a model for The Gold Hope Project This is a video from her session and a few pictures.  She was so giggly for Morgan and Julie.  She just LOVED playing with the glitter!  If you listen closely you'll hear her sing "The Booger Song" (this is right after she picks her nose...LOL).  She learned this from Dr. Etzl and he sung it for her every time she asked.  She was a sight to see and I'm so happy to share it with you! 

I want to thank Morgan Kervin Photography and Jewels Avenue Photgraphy for all their hard work putting this together!  I know we will cherish the pictures and video of this forever!!    

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9 Responses to “Living with DIPG- Giggles, Glitter and Gold!”
  1. Emily says:

    Gorgeous! I know she is your "big" girl but these photos and video really show what a little one she still is. Wonderful treasures, no doubt. Prayers from AZ for your whole family.

  2. Anonymous says:

    She is so adorable! love her boogie song.

  3. Lisbeth says:

  4. How precious! I know you are so proud of her! I love her giggles and that Booger Song :)

  5. Ava is so precious! I love this video and the Booger Song is hilarious :)

  6. Aww! What a little princess she is! Looks like she had a great time with the glitter :)

  7. Elizabeth says:

    How precious! Love all that glitter! Looks like she had a great time!

  8. Kat says:

    Ava, we can wait to see you next week and learn the words to the booger song! Love you...Aunt Kat and Uncle Brian

  9. Ava, your beautiful! Such a pretty singer. You remind me of my little Angel, Myah Sue. Praying for you. We know how awful DIPG is. We love seeing your smile! Keep smiling and bringing joy to all who know and love you!

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