Coping with DIPG- I wish I was Childless

"I wish I was childless."  
A stranger said those words to me while her own children were obviously getting on her nerves.  I keep hearing her say that over and over.  Would she feel the same way if one of her children was fighting for their life, battling a disease that kills innocent children?  

It seems heartless because I'm sure she wouldn't and was just having a stressful moment.  As parents, we all have those moments and its hard to know who your audience is when saying certain things.  You can't tell by looking at me what my daughter is going through. 

But those words are still ringing in my ear.  Please be careful what you say.  Yes kids can and will drive you crazy at times but would you really rather be childless or (insert your stress reliever crazy saying here)?   

I know parents who have lost their precious babies would give anything to get those crazy moments back.  Cherish them...the good and the crazy.  They don't last forever.   


5 Responses to “Coping with DIPG- I wish I was Childless”
  1. Brandi carle says:

    Thank you for posting this Cynthia! I needed to be reminded to cherish every moment with my kids even during those crazy times when I just want to pull my hair out! Lol. I pray for you guys everyday!

  2. Desi says:

    Thank you for sharing. Sending our prayers , love & thoughts all across the world from Japan.

  3. micheflet says:

    I hate that this is happening. I wish it were not, more then anything. I am a very religious person by most eyes, and I do believe that there is a much better place for us after this life, a place of eternity where we will not suffer and live forever. But still, I am sad for what is happening to Ava, you, Jeremy and Myla, and everyone who is still here praying for you everyday, that Jesus will take all this pain away from you for all who are a witness to this tragedy. I truly believe He will, somehow, someway, I know He is who He says He is and He does what He says He does. For whatever reason this is happening, beyond our understanding or ability to make it stop, there is peace, love and mercy, like that which came to Jesus on the Cross when everyone turned away from Him, but He never left us, not then, not now, not ever.

  4. Anonymous says:

    Wisdom! Thanks for sharing. Miss you guys, always praying for Ava and your whole family! -Megan L.

  5. Anonymous says:

    My family and I are always praying for Ava. Some people take everything for granted. I know I did. Since my diagnosis, I have started to lose feeling in my left side and I can't even imagine what ava must be going through. the thought of leaving my babies breaks my heart. I praise you for the strength you're showing thru this.

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