We got the official word today that we are out of the clinical trial here in Phoenix because the tumor has progressed.
The lesions to her spine are from the PONS and the other tumor as well. Her doctor thinks that some of the tumor broke away from the pons to the spine and then got pushed back to the brain, planting itself on her dura.
We have to decide how to treat the spread if at all possible. Radiation to her spine will be the most likely treatment. We haven't decided if we want to do another trial for progression or treat the spine with chemotherapy yet.
We do know that we will be going home to Texas in about a month or so. It will be bittersweet to leave here and all the wonderful people at Phoenix Children's Hospital who have been so kind to us and Ava. We will definitely miss my grandparents, uncle, aunt, cousins and brother who have helped us so much here. They are one of the reasons we picked this trial and I know Ava has loved being around her family.
We'll update once we find out more but once again thank you so much for all your prayers and support!
If you would like to make a donation to the Dawson Family, click here.
If you would like to make a donation to the Dawson Family, click here.
My heart is breaking for you and your family. If you need anything to help your move on this end let me know. Our family will keep praying for healing.
I am at a loss for words..... Our love and prayers are here for you guys. If there is anything I can do from here let me know..
I hope the girls enjoy the care package I sent..
Love,
Uncle Jay, Aunt Bean, Emily and Haley